| Description |
xxi, 462 pages : illustrations ; 24 cm |
| Bibliography |
Includes bibliographical references and index. |
| Contents |
Prologue : Genetics and genomic health care : the mission and aims of the National Human Genome Research Institute and its potential impact on clinical practices / Dale Halsey Lea, Jean F. Jenkins -- Introduction : Genetics and ethics in nursing : new questions in the age of genomic health / Rita Black Monsen -- Coda : Genetics and genomics in historical context : a brief history of the early days of clinical genetics / Margaret Abbott -- How far we have come / Rita Black Monsen -- pt. 1. Genetics, genomics, and ethics : basic considerations -- The ANA code of ethics / Laurie Badzek -- Integrating ethical guidelines with scope and standards of genetics and genomics nursing practice / Karen Greco -- Shaping genetic policy : the United States initiatives / Agnes Masny -- Principles of healthcare ethics for the twenty-first century / Chris Hackler -- Redefining the conventions of informed consent : challenges in the genomic era / Robbie J. Dugas, Melinda Granger Oberleitner -- Genetic inheritance, identity, and the proper role of nursing / Sharon Olsen -- Danger and genomic technologies / Rita Black Monsen -- pt. 2. Religious and cultural perspectives of communities and societies -- Hinduism and Sikhism : genetic counseling aspects / Elizabeth Gettig, Triptish Bhatia -- "Every generation--" : a Jewish approach to questions of genetic research, testing and screening, and gene therapy / Michael L. Feshbach -- The Catholic Church views on genetic testing : indications for genetic counselors / Rebecca B. Donohue -- Attitudes of Muslims regarding the new genetics : testing, treatment, and technology / Noureddine Berka, Timikia Vaughn, Verle Headings, Barbara W. Harrison, Robert F. Murray, Jr., Franklin R. Ampy, Johari Abdul-Malik -- Genetics and ethics from a Christian perspective / Isaac M.T. Mwase, Connie C. Price -- Native American communities : perspectives on healthcare genetics / Linda Burhansstipanov, Lynne Taylor Bemis, Daniel G. Petereit -- Hispanic/Latino perspectives on genetics and ethics / Carmen T. Paniagua, Robert E. Taylor -- African American perspectives on genetics and ethics / Ida J. Spruill, Bernice Coleman -- pt. 3. Applications of genetics and genomics in health care -- Concerns of patients and families surrounding genetic testing / Janet K. Williams -- Parental request for advanced directives : decision-making in evolving environments / Robin R. Leger -- Ethical analysis of genetic testing in children / John G. Twomey -- Genetics and ethics in nursing : cancer prevention for clients with inherited cancer risk / Cathleen M. Goetsch -- Ethical obligations to patients who engage in lifelong self-surveillance for genetic risk of cancer / Ellen Giarelli -- Cystic fibrosis : screening, testing, ethics / Diane Seibert, Melissa H. Fries -- Genetic testing and counseling in Huntington disease / Heather Skirton -- pt. 4. Case studies in genetics and ethics -- Prenatal case study / Dale Halsey Lea -- Sickle cell disease case study / Victoria Odesina -- Case study in hereditary breast and ovarian cancer / Sue Miller-Samuel -- Hereditary nonpolyposis colon cancer : a case study of ethical implications / Deborah J. MacDonald -- The P family, at risk for Alzheimer's disease / Rita Black Monsen -- Epilogue: genetics and ethics in health care and nursing / Rita Black Monsen -- Glossary of terms. |
| Summary |
This book explores current ethical challenges associated with advances in genetics technology and genomic health care from a wide cross-section of cultural, racial, religious, and technical perspectives. While these advances are at the cutting edge of understanding the casual factors of health and illness, they also demand that we acknowledge and respect the deeply complex and diverse moral and ethical concerns that can impact the decisions of individual patients and the lives of their families and communities. |
| Subject |
Medical genetics -- Moral and ethical aspects.
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Nursing ethics.
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Nursing ethics -- Cross-cultural studies.
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Genetics, Medical -- ethics.
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Delivery of Health Care -- ethics.
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Nurse's Role.
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Genetic Predisposition to Disease.
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Informed Consent -- ethics.
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Genetic Privacy -- ethics.
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Health Policy.
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United States.
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Medical genetics -- Moral and ethical aspects.
(OCoLC)fst01014139
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Nursing ethics. (OCoLC)fst01041889
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| Genre/Form |
Cross-cultural studies. (OCoLC)fst01423769
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| Added Author |
Monsen, Rita Black.
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American Nurses Association.
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| ISBN |
9781558102637 (softcover ;) (alk. paper) |
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1558102639 (softcover ;) (alk. paper) |
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