| Description |
1 online resource (xxi, 462 pages) : illustrations |
| Bibliography |
Includes bibliographical references and index. |
| Contents |
Prologue : Genetics and genomic health care : the mission and aims of the National Human Genome Research Institute and its potential impact on clinical practices / Dale Halsey Lea, Jean F. Jenkins -- Introduction : Genetics and ethics in nursing : new questions in the age of genomic health / Rita Black Monsen -- Coda : Genetics and genomics in historical context : a brief history of the early days of clinical genetics / Margaret Abbott -- How far we have come / Rita Black Monsen -- pt. 1. Genetics, genomics, and ethics : basic considerations -- The ANA code of ethics / Laurie Badzek -- Integrating ethical guidelines with scope and standards of genetics and genomics nursing practice / Karen Greco -- Shaping genetic policy : the United States initiatives / Agnes Masny -- Principles of healthcare ethics for the twenty-first century / Chris Hackler -- Redefining the conventions of informed consent : challenges in the genomic era / Robbie J. Dugas, Melinda Granger Oberleitner -- Genetic inheritance, identity, and the proper role of nursing / Sharon Olsen -- Danger and genomic technologies / Rita Black Monsen -- pt. 2. Religious and cultural perspectives of communities and societies -- Hinduism and Sikhism : genetic counseling aspects / Elizabeth Gettig, Triptish Bhatia -- "Every generation--" : a Jewish approach to questions of genetic research, testing and screening, and gene therapy / Michael L. Feshbach -- The Catholic Church views on genetic testing : indications for genetic counselors / Rebecca B. Donohue -- Attitudes of Muslims regarding the new genetics : testing, treatment, and technology / Noureddine Berka, Timikia Vaughn, Verle Headings, Barbara W. Harrison, Robert F. Murray, Jr., Franklin R. Ampy, Johari Abdul-Malik -- Genetics and ethics from a Christian perspective / Isaac M.T. Mwase, Connie C. Price -- Native American communities : perspectives on healthcare genetics / Linda Burhansstipanov, Lynne Taylor Bemis, Daniel G. Petereit -- Hispanic/Latino perspectives on genetics and ethics / Carmen T. Paniagua, Robert E. Taylor -- African American perspectives on genetics and ethics / Ida J. Spruill, Bernice Coleman -- pt. 3. Applications of genetics and genomics in health care -- Concerns of patients and families surrounding genetic testing / Janet K. Williams -- Parental request for advanced directives : decision-making in evolving environments / Robin R. Leger -- Ethical analysis of genetic testing in children / John G. Twomey -- Genetics and ethics in nursing : cancer prevention for clients with inherited cancer risk / Cathleen M. Goetsch -- Ethical obligations to patients who engage in lifelong self-surveillance for genetic risk of cancer / Ellen Giarelli -- Cystic fibrosis : screening, testing, ethics / Diane Seibert, Melissa H. Fries -- Genetic testing and counseling in Huntington disease / Heather Skirton -- pt. 4. Case studies in genetics and ethics -- Prenatal case study / Dale Halsey Lea -- Sickle cell disease case study / Victoria Odesina -- Case study in hereditary breast and ovarian cancer / Sue Miller-Samuel -- Hereditary nonpolyposis colon cancer : a case study of ethical implications / Deborah J. MacDonald -- The P family, at risk for Alzheimer's disease / Rita Black Monsen -- Epilogue: genetics and ethics in health care and nursing / Rita Black Monsen -- Glossary of terms. |
| Note |
Print version. |
| Subject |
Medical genetics -- Moral and ethical aspects.
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Nursing ethics.
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Nursing ethics -- Cross-cultural studies.
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Genetics, Medical -- ethics.
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Delivery of Health Care -- ethics.
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Genetic Predisposition to Disease.
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Genetic Privacy -- ethics.
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Health Policy.
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Informed Consent -- ethics.
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Nurse's Role.
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United States.
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Medical genetics -- Moral and ethical aspects.
(OCoLC)fst01014139
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Nursing ethics. (OCoLC)fst01041889
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| Genre/Form |
Electronic books.
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Cross-cultural studies. (OCoLC)fst01423769
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| Added Author |
Monsen, Rita Black.
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American Nurses Association.
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| Other Form: |
Print version: Genetics and ethics in health care. Silver Spring, Md. : American Nurses Association, 2009 (DLC) 2008044243 (OCoLC)263294881 |
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