LEADER 00000cam  22000008a 4500 
001    ocn714029820 
003    OCoLC 
005    20120321204132.0 
008    110412t20122012enk           001 0 eng   
010      2011015749 
016 7  101558394|2DNLM 
016 7  015990853|2Uk 
020    9780199837168|qalkaline paper 
020    0199837163|qalkaline paper 
035    (OCoLC)714029820 
035    (OCoLC)714029820 
035    (OCoLC)714029820 
040    DNLM/DLC|beng|cDLC|dNLM|dUKMGB|dYDXCP|dBDX|dIK2|dMOF|dCDX
       |dVP@|dWHP 
042    pcc 
049    WHPP 
050 00 RB155.65|b.K55 2012 
060 10 QZ 21 
082 00 362.196/04207|223 
100 1  Klitzman, Robert. 
245 10 Am I my genes? :|bconfronting fate and family secrets in 
       the age of genetic testing /|cRobert L. Klitzman. 
264  1 Oxford :|bOxford University Press,|c[2012] 
264  4 |c©2012 
300    x, 365 pages ;|c25 cm 
336    text|btxt|2rdacontent 
337    unmediated|bn|2rdamedia 
338    volume|bnc|2rdacarrier 
504    Includes bibliographical references (pages [331]-346) and 
       index. 
505 0  Embarking on genetic journeys : introduction -- Do I want 
       to know? : testing decisions -- Whom should I tell? : 
       disclosures and testing in families -- Genetic test as 
       Rorschach : questions of why me? -- Am I my genes? : 
       genetic identities -- Lightning doesn't strike twice : 
       myths and misunderstandings about genetics -- What should 
       I do about my genes? : deciding on treatment -- Passing it
       on? : reproductive choices -- There's only privacy if you 
       make it : problems with privacy and insurance -- Keep it 
       in the family? : other disclosures beyond kin -- Crossing 
       over : entering genetic communities -- Testing everyone? :
       gene politics -- Genes in everyday life. 
520    As the world of information available through genetic 
       testing expands, so does the number of people confronted 
       with the issues that arise as a consequence. Klitzman 
       (psychiatry & bioethics, Columbia Univ.) presents the 
       results of interviews with 64 individuals affected by 
       Huntington's disease, breast and ovarian cancer, or Alpha-
       1 antitrypsin deficiency. Learning about their attitudes 
       and approaches to dealing with the range of choices, he 
       thinks, will be useful to readers with personal genetic 
       issues as well as to the professionals, family members, 
       friends, and colleagues in their lives. Much of the book 
       consists of quotes from those interviewed, with comments 
       and supplemental information from the author. Sections 
       cover whether to be tested, with whom to share results, 
       and how the interviewees see themselves. They also help 
       readers understand treatment decisions, reproductive 
       choices, privacy and insurance issues, wider disclosure 
       (including to genetic communities/support groups), and 
       global genetic politics. 
650  0 Genetic screening|xMoral and ethical aspects. 
650  0 Privacy, Right of. 
650  0 Medical records|xAccess control. 
650 12 Genetic Privacy|xethics. 
650 12 Genetic Testing|xethics. 
650 22 Disclosure|xethics. 
650 22 Family Relations. 
650 22 Genetic Diseases, Inborn. 
650 22 Self Disclosure. 
994    02|bWHP