| Description |
x, 365 pages ; 25 cm |
| Bibliography |
Includes bibliographical references (pages [331]-346) and index. |
| Contents |
Embarking on genetic journeys : introduction -- Do I want to know? : testing decisions -- Whom should I tell? : disclosures and testing in families -- Genetic test as Rorschach : questions of why me? -- Am I my genes? : genetic identities -- Lightning doesn't strike twice : myths and misunderstandings about genetics -- What should I do about my genes? : deciding on treatment -- Passing it on? : reproductive choices -- There's only privacy if you make it : problems with privacy and insurance -- Keep it in the family? : other disclosures beyond kin -- Crossing over : entering genetic communities -- Testing everyone? : gene politics -- Genes in everyday life. |
| Summary |
As the world of information available through genetic testing expands, so does the number of people confronted with the issues that arise as a consequence. Klitzman (psychiatry & bioethics, Columbia Univ.) presents the results of interviews with 64 individuals affected by Huntington's disease, breast and ovarian cancer, or Alpha-1 antitrypsin deficiency. Learning about their attitudes and approaches to dealing with the range of choices, he thinks, will be useful to readers with personal genetic issues as well as to the professionals, family members, friends, and colleagues in their lives. Much of the book consists of quotes from those interviewed, with comments and supplemental information from the author. Sections cover whether to be tested, with whom to share results, and how the interviewees see themselves. They also help readers understand treatment decisions, reproductive choices, privacy and insurance issues, wider disclosure (including to genetic communities/support groups), and global genetic politics. |
| Subject |
Genetic screening -- Moral and ethical aspects.
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Privacy, Right of.
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Medical records -- Access control.
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Genetic Privacy -- ethics.
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Genetic Testing -- ethics.
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Disclosure -- ethics.
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Family Relations.
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Genetic Diseases, Inborn.
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Self Disclosure.
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| ISBN |
9780199837168 alkaline paper |
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0199837163 alkaline paper |
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