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Author Marcus, Amy Dockser, author.

Title We the scientists : how a daring team of parents and doctors forged a new path for medicine / Amy Dockser Marcus.

Publication Info. New York : Riverhead Books, 2023.
©2023

Copies

Location Call No. Status
 Manchester, Main Library - Basement Materials  618.92 MARCUS    Check Shelf
 Newington, Lucy Robbins Welles Library - Adult Department  618.92 MARCUS    Check Shelf
 Windsor, Main Library - Adult Department  618.92 MA    Check Shelf
Edition First edition.
Description xxx, 222 pages ; 22 cm
Bibliography Includes bibliographical references (pages 203-213) and index.
Contents Introduction: We the scientists -- The here and now -- A different fear -- The fishing expedition -- The catalysts -- The opera singer -- The broad jump -- New hit -- Reverberations -- Persuasion -- The greater good -- Complications -- The community's drug -- Lilies and doves -- The cathedral of science.
Summary "Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"-- Provided by publisher.
Subject Niemann-Pick diseases -- Treatment.
Rare diseases -- Patients.
Genetic disorders in children -- Patients -- Family relationships.
Parents of children with disabilities.
Parents of children with disabilities. (OCoLC)fst01053495
Rare diseases -- Patients. (OCoLC)fst01983583
Added Title How a daring team of parents and doctors forged a new path for medicine
Other Form: Online version: Dockser Marcus, Amy. We the scientists First edition. New York : Riverhead Books, 2023 9780399576157 (DLC) 2022023325
ISBN 9780399576133 (hardcover)
0399576134 (hardcover)
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