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Title Gene mapping : using law and ethics as guides / edited by George J. Annas, Sherman Elias.

Imprint New York : Oxford University Press, 1992.

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Location Call No. Status
 University of Saint Joseph: Pope Pius XII Library - Standard Shelving Location  174.25 G326G    Check Shelf
Description xxii, 291 pages : illustrations ; 25 cm
Bibliography Includes bibliographical references and index.
Contents The major social policy issues raised by the Human Genome Project / George J. Annas and Sherman Elias -- The Human Genome Project : plans, status, and applications in biology and medicine / Victor A. McKusick -- Those who forget their history : lessons from the recent past for the human genome quest / Judith P. Swazey -- Genomics and eugenics : how fair is the comparison? / Robert N. Proctor -- The past as prologue : race, class, and gene discrimination / Patricia A. King -- Determinism and reductionism : a greater threat because of the Human Genome Project? / Evelyne Shuster -- If gene therapy is the cure, what is the disease? / Arthur L. Caplan -- Somatic and germline gene therapy / Sherman Elias and George J. Annas -- Privacy and control of genetic information / Ruth Macklin -- Genetic predisposition and the Human Genome Project : case illustrations of clinical problems / Ray White, C. Thomas Caskey.
(cont.) Carrier screening for cystic fibrosis : a case study in setting standards of medical practice / Sherman Elias, George J. Annas, and Joe Leigh Simpson -- What we still don't know about genetic screening and counseling / James Sorenson -- The potential impact of the Human Genome Project on procreative liberty / John A. Robertson -- Patent rights in the Human Genome Project / Rebecca S. Eisenberg -- Speaking unsmooth things about the Human Genome Project / Thomas H. Murray -- A national advisory committee on genetic testing and screening / LeRoy Walters -- Social policy research priorities for the Human Genome Project / George J. Annas and Sherman Elias.
Summary This pathfinding book thoroughly identifies and explores the legal and ethical dimensions of the new genetics and the Human Genome Project. While accepting the goals of modern genetics research, the book takes a critical approach to the Human Genome Project. More precise genetic information will likely result in genetic discrimination, and will threaten genetic privacy in employment and insurance. The way we view disease, normalcy and our own humanness will undergo significant change as clinical medicine becomes increasingly genetics based. We are more than our genes, but mapping them will move society into "genetics territory," and we may act as if our genes determine our destiny. This timely work brings together a group of the nation's leading experts in genetics, medicine, history of science, health, law, philosophy of science, and medical ethics to assess the current state of modern human genetics, and to begin to chart the legal and ethical guidelines needed to prevent the misuse of human genetics from leading to the abuse of human beings. The six sections of the book, read together, map the social policy con tours of modern human genetics. The first part describes the science of the Human Genome Project. The second addresses specific social policy implications, including the relevance of recombinant DNA history, the eugenics legacy, military applications, and issues of race and class in the context of genetic discrimination. Broader philosophical issues, including reductionism and determinism, the concept of disease, and using germline gene therapy to "improve" human beings are discussed in the third part. The fourth is directed at the clinical implications of the new genetics, including privacy and confidentiality, genetic screening, and counseling. The fifth part focuses on the legal and ethical frontiers in genetics, especially procreative liberty, patent issues, and regulatory mechanisms. Finally, a prioritized social policy research agenda is presented which suggests that immediate emphasis be on (1) determining the rules for introducing a new genetic test into medical practice; (2) protecting the confidentiality and privacy of an individual's genetic information; (3) preventing employment and insurance discrimination based on genetics; and (4) exploring how the new genetics will affect our concepts of "disease," "normalcy," and "humanness."
Note APPE gift. InGrD
Subject Human Genome Project.
Human gene mapping -- Moral and ethical aspects.
Human gene mapping -- Law and legislation.
Human Genome Project.
Genetic Testing. https://id.nlm.nih.gov/mesh/D005820
Public Policy. https://id.nlm.nih.gov/mesh/D011640
Chromosome Mapping -- methods. https://id.nlm.nih.gov/mesh/D002874Q000379
Ethics, Medical. https://id.nlm.nih.gov/mesh/D004992
Genetics, Medical. https://id.nlm.nih.gov/mesh/D005826
United States. https://id.nlm.nih.gov/mesh/D014481
Projet sur le génome humain.
Human Genome Project. (OCoLC)fst00636031
Human gene mapping -- Law and legislation. (OCoLC)fst00963070
Human gene mapping -- Moral and ethical aspects. (OCoLC)fst00963071
Cartographie chromosomique -- Méthodes -- Congrès comme sujet.
Éthique des médecins -- Congrès comme sujet.
Dépistage génétique -- États Unis d'Amérique -- Méthodes -- Congrès comme sujet.
Génétique médicale -- Congrès comme sujet.
Politique publique -- États Unis d'Amérique -- Congrès comme sujet.
Human Genome Project.
Ethische aspecten.
Indexed Term Humans Genetics Ethics
Genre/Form Congress. https://id.nlm.nih.gov/mesh/D016423
Legislation. https://id.nlm.nih.gov/mesh/D020485
Added Author Annas, George J.
Elias, Sherman.
Mazal Holocaust Collection. TxSaTAM
Other Form: Online version: Gene mapping. New York : Oxford University Press, 1992 (OCoLC)608121514
ISBN 0195073037 (alk. paper)
9780195073034 (alk. paper)
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