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100 1  Crowley, John F.,|d1967-|eauthor. 
245 10 Chasing Miracles :|bThe Crowley Family Journey of Strength,
       Hope, and Joy /|cJohn F. Crowley. 
264  1 [Place of publication not identified] :|bHarperCollins,
       |c[2010] 
264  4 |c©2010 
300    1 online resource (224 pages) 
336    text|btxt|2rdacontent 
337    computer|bc|2rdamedia 
338    online resource|bcr|2rdacarrier 
506    Access limited to subscribing institutions. 
520    When John and Aileen Crowley learned that their two 
       youngest children had a rare and little understood genetic
       disorder, they didn't hope for miracles: they made them 
       happen. In 1998, 15-month-old Megan and 4-month-old 
       Patrick were diagnosed with Pompe disease, a rare and 
       fatal neuromuscular disorder that affects only a few 
       thousand children worldwide, usually leaving them with 
       little to no muscle function, enlarged hearts, and severe 
       difficulty breathing. The Crowleys were told to take their
       children home and enjoy their short time together ... 
       there is nothing that can be done." Raised in a blue-
       collar neighborhood in northern New Jersey, John Crowley, 
       a recent Harvard MBA graduate working at Bristol-Myers 
       Squibb, was just beginning to taste success in corporate 
       America. But now he was absolutely determined to find a 
       treatment to save his children's lives. Frustrated with 
       the pace of Pompe research, Crowley walked away from the 
       corporate world at the age of 31 to help co-found a start-
       up biotech company, focused exclusively on producing a 
       lifesaving medicine. In Chasing Miracles , John Crowley 
       writes from his heart about how he and his wife set out to
       do "whatever it takes" against phenomenal odds to help 
       Megan and Patrick first to survive, and then to thriveand 
       to keep their family, including oldest son John Jr., 
       together and their marriage strong. He tells about 
       learning to ask for help, about not losing faith, about 
       coping with adversity, about the generosity and kindness 
       of others, and, most importantly, about what it means to 
       never, never quit. As Aileen Crowley writes in her 
       foreword, "This book is our family's attempt to share much
       of what we have learned, especially from our children, who
       have taught us more about life and love than we have ever 
       taught them.". 
588 0  Print version record. 
600 30 Crowley family. 
650  0 Glycogen storage disease type II|xPatients|zUnited States
       |vBiography. 
650  7 BIOGRAPHY & AUTOBIOGRAPHY / Personal Memoirs.|2bisacsh 
655  0 Electronic books. 
700 1  Crowley, Aileen,|eauthor. 
700 1  Kurson, Ken. 
776 08 |iPrint version:|aCrowley, John F., 1967-|tChasing 
       miracles.|dNew York : Newmarket Press, c2010.
       |z9781557049100 (hardcover : alk. paper)|w(DLC)2009052750 
914    frd00023703