| Description |
1 online resource (x, 365 pages) |
| Bibliography |
Includes bibliographical references and index. |
| Contents |
Embarking on Genetic Journeys: Introduction -- "Do I Want to Know?": Testing Decisions -- "Whom Should I Tell?": Disclosures and Testing in Families -- Genetic Tests as Rorschachs: Questions of "Why Me?" -- "Am I My Genes?": Genetic Identities -- "Lightening Doesn't Strike Twice": Myths and Misunderstandings about Genetics -- "What Should I Do About My Genes?": Deciding on Treatment -- "Passing it On?": Reproductive Choices -- "There's Only Privacy If You Make It": Problems with Privacy and Insurance -- "Keep it in the Family?": Other Disclosures Beyond Kin -- "Crossing Over": Entering Genetic Communities -- "Testing Everyone?": Gene Politics -- Genes in Everyday Life -- Appendix A: Genetic Testing 101 -- Appendix B: Sample Questions from Semi-Structured Interviews -- Appendix C: Additional Details Concerning Methods. |
| Note |
Online resource; title from PDF title page (viewed May 8, 2013). |
| Summary |
In the fifty years since DNA was discovered, we have seen extraordinary advances. For example, genetic testing has rapidly improved the diagnosis and treatment of diseases such as Huntington's, cystic fibrosis, breast cancer, and Alzheimer's. But with this new knowledge comes difficult decisions for countless people, who wrestle with fear about whether to get tested, and if so, what to do with the results. Am I My Genes? shows how real individuals have confronted these issues in their daily lives. Robert L. Klitzman interviewed 64 people who faced Huntington's Disease, breast and ovarian cancer. |
| Access |
Due to publisher license, access is restricted to authorised GRAIL clients only. Please contact GRAIL staff. |
| Subject |
Genetic screening -- Moral and ethical aspects.
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Privacy, Right of.
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Medical records -- Access control.
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Disclosure -- Ethics.
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Families.
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Genetic Diseases, Inborn.
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Genetic Privacy -- Ethics.
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Human chromosome abnormalities -- Diagnosis -- Ethics.
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Self-disclosure.
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Social sciences.
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Health.
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Medicine.
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HEALTH & FITNESS -- Diseases -- Genetic.
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Genetic screening -- Moral and ethical aspects.
(OCoLC)fst01766784
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Medical records -- Access control.
(OCoLC)fst01014549
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Privacy, Right of. (OCoLC)fst01077444
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| Genre/Form |
Electronic books.
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| Other Form: |
Print version: Klitzman, Robert L. Am I My Genes? : Confronting Fate and Family Secrets in the Age of Genetic Testing. Oxford : Oxford University Press, USA, ©2012 9780199837168 |
| ISBN |
9780199837175 (ebook) |
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