LEADER 00000cam 22005058i 4500
001 on1153649345
003 OCoLC
005 20210105134938.0
008 200923s2021 nyu b 000 0deng
010 2020041716
020 9780316492508|q(hardcover)
020 0316492507|q(hardcover)
020 |z9780316492492|q(ebook)
035 (OCoLC)1153649345
040 DLC|beng|erda|cDLC|dOCLCO|dOCLCF|dUAP
042 pcc
049 MCPL
050 00 RB150.F37|bW52 2021
082 00 362.196/0478|223
082 04 616.0478|223
100 1 White, Tracie,|eauthor.
245 14 The puzzle solver :|ba scientist's desperate quest to cure
the illness that stole his son /|cTracie White; with
Ronald W. Davis, PhD.
250 First edition.
264 1 New York :|bHachette Books,|c2021.
264 4 |c©2021
300 xiii, 222 pages ;|c24 cm
336 text|btxt|2rdacontent
337 unmediated|bn|2rdamedia
338 volume|bnc|2rdacarrier
504 Includes bibliographical references (pages 213-222).
505 0 Introduction -- The house -- The invisible patient -- The
adventure -- A mysterious diagnosis -- Rocket boy -- Blood
trails -- Raggedy Ann syndrome -- In search of lost time -
- The map -- The heartbreaker -- Vindication -- The
superman -- Epilogue.
520 "For the past six years, Whitney Dafoe has been confined
to a bedroom in the back of his parents' home, unable to
walk, to eat, to speak. The sound of music causes him
pain. At one point, the formerly healthy, young, freelance
photographer, faced starvation as his 6'3" frame withered
to 115 pounds. In desperation, Whitney and his parents
went from one specialist to another, and still no answers.
Then, finally, a diagnosis: the mysterious disease myalgic
encephalomyelitis or chronic fatigue syndrome (ME/CFS).
Whitney's story is heartbreaking, but it's also one of
redemption. It reaches far beyond just one family's
harrowing tale. Today, ME/CFS affects between 1 and 2.5
million Americans--and 20 million people around the world.
Those afflicted largely suffer in silence because the
disease is little known and much misunderstood. The
question lingers still whether it even exists outside the
patient's mind. Often disbelieved, they're abandoned by
family and friends. They lose their jobs, and battle with
insurance companies over rising medical costs as the
chronic disease continues on year after year. In one way,
Whitney has been lucky. He could reach out to his father,
a world renowned, scientist, for answers. This book is the
story of one father's desperate hunt for the insidious
illness that stole his son away. Invisible follows Ron as
he unravels the molecular trail within his own son's
donated blood and genome, to began to find answers. He
confirms this is a biological disease and uncovers new
possibilities for treatments and potentially a cure. At
its heart, Invisible is about more than just cutting edge
research or a race to find the cure for ME/CFS--it's about
the unbreakable bond between a father and his son, and the
lengths to which a parent will go to save their child's
life"--|cProvided by publisher.
600 10 Dafoe, Whitney.
600 10 Davis, Ronald W.|q(Ronald Wayne),|d1941-
650 0 Chronic fatigue syndrome|xTreatment.
650 0 Myalgic encephalomyelitis|xTreatment.
650 0 Myalgic encephalomyelitis|xPatients|vBiography.
650 0 Fathers and sons|vBiography.
650 7 MEDICAL / Pathology.|2bisacsh
650 7 Chronic fatigue syndrome|xTreatment.|2fast
|0(OCoLC)fst00860114
650 7 Fathers and sons.|2fast|0(OCoLC)fst00921899
650 7 Myalgic encephalomyelitis|xPatients.|2fast
|0(OCoLC)fst01031275
655 7 Biographies.|2fast|0(OCoLC)fst01919896
655 7 Biographies.|2lcgft
700 1 Davis, Ronald W.|q(Ronald Wayne),|d1941-|eauthor.
914 MID.b26643212
994 C0|bMCP
Berlin-Peck Memorial Library - Non Fiction
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Bristol, Main Library - Non Fiction
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616.0478 WHITE |
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Manchester, Main Library - Non Fiction
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362.196 WHITE |
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Middletown, Russell Library - NEW Adult Nonfiction
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362.196 WHI |
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New Britain, Main Library - Non Fiction
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616.047 WHI |
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Newington, Lucy Robbins Welles Library - Adult Department
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616.0478 WHITE |
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West Hartford, Noah Webster Library - Non Fiction
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616.0478 WHITE |
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