Includes bibliographical references (pages 199-201) and indexes.
The diagnosis disclosure -- Coping with hospital and treatment -- Communication : a two-way street -- Support : where to turn for help -- The education and learning experience -- Day-to-day family life -- When hope fades : parenting a child who's terminally ill -- Conclusion.
Print version record.
'[A] valuable addition to the literature on chronic paediatric illness ... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical ... There is much to be learnt from this book and it deserves careful reading.'. - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London. 'Sharon Dempsey's well-written, thoughtful and practical guide to caring for a child.