LEADER 00000cam  2200493Ii 4500 
001    ocn978289882 
003    OCoLC 
005    20170801184032.0 
008    170318s2017    njuh          001 0deng d 
020    9781483592725|q(paperback) 
020    1483592723|q(paperback) 
035    (OCoLC)978289882 
040    BTCTA|beng|erda|cBTCTA|dBDX|dIUO|dJAI|dDAD|dOCLCF|dCPL
       |dWHP 
043    n-us--- 
049    WHPP 
050  4 HQ759.913|b.K725 2017 
082 04 618.92/836|223 
100 1  Kramer, Laura Shapiro,|eauthor. 
245 10 Uncommon voyage :|bparenting children with special needs :
       a guidebook /|cby Laura Shapiro Kramer. 
246 30 Parenting children with special needs :|ba guidebook 
250    First edition. 
264  1 [Pennsauken, New Jersey?] :|bBookBaby,|c[2017] 
264  4 |c©2017 
300    xxvi, 166 pages ;|c23 cm 
336    text|btxt|2rdacontent 
337    unmediated|bn|2rdamedia 
338    volume|bnc|2rdacarrier 
504    Includes bibliographical references (pages 155-162) and 
       index. 
505 0  Ship's manifest -- A brief narrative of my personal 
       journey -- Logging : using a journal to track and guide 
       your journey -- Home port : becoming aware of your 
       personal style -- Semaphore : shaping and sending the 
       message of your child's situation -- Mapping : defining 
       yourself as the parent of a special-needs -- Raising 
       anchor : approaching research and advocacy on behalf of 
       your child -- Ship's officers : embracing the joys and 
       challenges in an intimate relationship as parents of a 
       special needs child -- Traveling companions : determining 
       the individuals and therapies to take on board -- Course 
       correction : transforming self on both personal and 
       professional levels -- All hands on deck : latching on to 
       what you can do on your own right now -- Shipmates : 
       meeting the challenges for siblings and special needs 
       children -- Naval academy : accessing education and 
       appropriate services for your child -- Anchors and wings :
       enlarging your child's world to encourage freedom and 
       build self-esteem -- Storms at sea : confronting universal
       challenges : financial considerations, transitions of 
       caregivers, therapists, and doctors, and the place of 
       faith -- Restoring : drawing on life experiences for the 
       tools to restore yourself -- Lifesavers : ten tried and 
       true moorings to latch on to -- Afterword: "The only 
       failure is not trying" -- Appendix: What I learned off the
       main course -- Appendix: A-Z : detailed descriptions of 
       therapies and methodologies referenced in the book 
       including links for further learning. 
520    "Kramer, author of a 1997 book (also titled Uncommon 
       Voyage) that recounts her struggles to find alternative 
       therapies to treat her son's cerebral palsy, returns with 
       a guidebook to help parents cope with the burdens and joys
       of raising a special-needs child. As she explains to new 
       readers, after her son, Seth, was diagnosed with cerebral 
       palsy, she found herself dissatisfied with what 
       conventional medicine was offering and thus sought out new
       treatments. Throughout this new book, Kramer's experience 
       and empathy shine through. Parents are encouraged to 
       recognize that they are experts on their own children and 
       that they should feel confident in their own knowledge. 
       There is ample guidance regarding finding the help your 
       child needs as well as an extensive resource section. 
       Kramer also offers practical advice to parents on how to 
       prevent their children's needs from consuming them. The 
       concern and respect Kramer shows for the children of her 
       readers and the advice she gives to parents about their 
       children are informed by her son's willingness to speak 
       for himself in a world uncomfortable with disabilities. 
       This is a well-thought-out guide for parents that provides
       a flexible and compassionate approach to learning how best
       to help your child and yourself."--BookLife, April 2017. 
600 10 Kramer, Laura Shapiro|xFamily. 
600 10 Kramer, Seth|c(Cerebral palsy patient)|xHealth. 
650  0 Parents of children with disabilities. 
650  0 Parents of children with disabilities|zUnited States
       |vBiography. 
650  0 Children with disabilities|xCare. 
650  0 Children with disabilities|xCare|vCase studies. 
650  0 Cerebral palsied children|zUnited States|vBiography. 
650  0 Cerebral palsy|vCase studies. 
650  7 Cerebral palsied children.|2fast|0(OCoLC)fst00851315 
650  7 Cerebral palsy.|2fast|0(OCoLC)fst00851326 
650  7 Parents of children with disabilities.|2fast
       |0(OCoLC)fst01053495 
651  7 United States.|2fast|0(OCoLC)fst01204155 
914    FARM246208 
994    C0|bWHP