LEADER 00000cam a22006494a 4500 
001    ocm62325132  
003    OCoLC 
005    20200608053802.0 
008    051110s2006    enk      b    001 0 eng   
010      2005056597 
015    GBA606404|2bnb 
016 7  101274824|2DNLM 
016 7  013360330|2Uk 
019    62714859|a854957679|a1022668538|a1110985246 
020    1403997675|q(hbk.) 
020    9781403997678 
024 3  9781403997678 
035    (OCoLC)62325132|z(OCoLC)62714859|z(OCoLC)854957679
       |z(OCoLC)1022668538|z(OCoLC)1110985246 
040    DLC|beng|cDLC|dBWKUK|dBAKER|dNLM|dUKM|dYDXCP|dIG#|dBTCTA
       |dOCLCF|dOCLCQ|dZZAND|dOCLCO|dOCLCQ|dOCLCO|dUZ0|dTHHCU
       |dCNUTO|dVGM|dTHHCU|dNJR|dUKMGB 
042    pcc 
049    STJJ 
050 00 RJ380|b.V552 2006 
060 00 2006 E-622 
060 10 WS 200|bV637w 2006 
082 00 618.92|222 
100 1  Vickers, Margaret H.|q(Margaret Heather),|d1962- 
245 10 Working and caring for a child with chronic illness :
       |bdisconnected and doing it all /|cMargaret H. Vickers. 
260    Basingstoke [England] ;|aNew York :|bPalgrave Macmillan,
       |c2006. 
300    x, 225 pages ;|c23 cm 
336    text|btxt|2rdacontent 
337    unmediated|bn|2rdamedia 
338    volume|bnc|2rdacarrier 
504    Includes bibliographical references (pages 203-221) and 
       index. 
505 00 |tPrologue : their story : 'no-one ever asked about me 
       before...' --|g1.|tCaring and working as work-home 
       conflict --|g2.|tA useful research design --|g3.
       |tDisconnected and doing it all --|g4.|tUnacknowledged 
       grief --|g5.|tCruelty and indifference --|g6.|tClayton's 
       support --|g7.|tWorking and caring --|g8.|tSurvival, 
       compassion and action --|tEpilogue : creating a new story?
       --|gVignette 1.|tSupport and other assistance --|gVignette
       2.|tCruelty, thoughtlessness, managerialism --|gVignette 
       3.|tEmotions in the workplace --|gVignette 4.
       |tRelationships --|gVignette 5.|tFeeling different, alone 
       --|gVignette 6.|tFinancial assistance --|gVignette 7.
       |tDisclosure --|gVignette 8.|tCareer, promotions, 
       opportunities --|gVignette 9.|tWork flexibility --
       |gVignette 10.|tChildcare concerns --|gVignette 11.
       |tCoping --|gVignette 12.|tFear and grief --|gVignette 13.
       |tDiscrimination (because of your child) --|gVignette 14.
       |tBullying (made worse because of your child). 
520 1  "This qualitative research highlights an important (but 
       neglected) work and family issue - the experiences of full
       -time workers who also care for a child suffering from 
       chronic illness or disability. The women in this study 
       share a sense of disconnection from those around them 
       because of the extreme responsibility of being the primary
       (sometimes the sole) carer for the child, and because they
       suffer from an ongoing and unacknowledged grief, and 
       because of the insensitivity or cruelty of those around 
       them, including their workplace colleagues. The women also
       report on their approaches to survival, at work and at 
       home, and share uplifting stories of kindness and 
       resilience in the face of sometimes overwhelming 
       challenges. The stories are presented through narrative 
       explorations which include poems, interviews, fictional 
       diary entries and constructed vignettes. Students, 
       researchers and professionals in health care management, 
       gender studies, social policy and the sociology of the 
       family will find this a stimulating and disturbing 
       resource."--BOOK JACKET. 
650  0 Chronically ill children|xMedical care. 
650  0 Chronically ill children|xCare. 
650  0 Sick children|xCare. 
650  7 Chronically ill children|xCare.|2fast|0(OCoLC)fst00860177 
650  7 Chronically ill children|xMedical care.|2fast
       |0(OCoLC)fst00860185 
650  7 Sick children|xCare.|2fast|0(OCoLC)fst01118068 
650 12 Chronic Disease|xtherapy. 
650 22 Mother-Child Relations. 
650 22 Women, Working. 
650 22 Social Isolation. 
650 22 Child. 
856 41 |3Table of contents only|uhttp://www.loc.gov/catdir/
       enhancements/fy0643/2005056597-t.html 
856 42 |3Contributor biographical information|uhttp://www.loc.gov
       /catdir/enhancements/fy0643/2005056597-b.html 
856 42 |3Publisher description|uhttp://www.loc.gov/catdir/
       enhancements/fy0643/2005056597-d.html 
994    C0|bSTJ