LEADER 00000cam  2200000 a 4500 
001    ocn460054188 
003    OCoLC 
005    20100524123828.0 
008    100106t20102010caua          000 0aeng   
010      2009052553 
020    9781582435787 
020    1582435782 
035    (Sirsi) i9781582435787 
035    (Sirsi) i9781582435787 
035    (OCoLC)460054188 
040    DLC|beng|cDLC|dBTCTA|dYDXCP|dIH9|dC#P|dBWX|dCKE 
049    CKEA 
050 00 RL793|b.R68 2010 
082 00 362.198/30092|aB|222 
100 1  Rough, Bonnie J. 
245 10 Carrier :|buntangling the danger in my DNA /|cBonnie J. 
       Rough. 
264  1 Berkeley :|bCounterpoint :|bDistributed by Publishers 
       Group West,|c[2010] 
264  4 |c©2010 
300    316 pages :|billustrations ;|c21 cm 
336    text|btxt|2rdacontent 
337    unmediated|bn|2rdamedia 
338    volume|bnc|2rdacarrier 
520    Rough's first-person account of carrying the gene for 
       hypohidrotic ectodermal dysplasia includes monologues by 
       her grandfather Earl, who died when she was a baby. His 
       illness from the genetic disorder--characterized by sparse
       hair, cone-shaped teeth, inability to sweat, and 
       distinctive facial features, including a deformed nose--is
       carried invisibly by mothers and passed to sons. Testing 
       for carriers is now possible, and Rough recognizes with 
       excruciating acuteness that, along with the certainty the 
       test confers comes the potential for moral crisis should 
       she and her husband conceive a son. Readers will be moved 
       by her emotional pain, but equally affecting is Earl's. 
       Whether speaking of his siblings' childhood embarrassment 
       about his appearance or his increasing drug use (begun to 
       aid his sleep), which eventually had him stealing his own 
       company's pharmaceutical assets,  is the haunting voice of
       the past that overshadows the present in this compelling 
       read. 
600 10 Rough, Bonnie J.|xHealth. 
650  0 Ectodermal dysplasia|xPatients|vBiography. 
938    Baker and Taylor|bBTCP|nBK0008613679 
938    YBP Library Services|bYANK|n3190342 
938    Blackwell Book Service|bBBUS|nR0845817|c$15.95 
994    02|bCKE