| Description |
1 online resource (xxi, 109 pages) : color illustrations |
| Access |
Open access GW5XE |
| Bibliography |
Includes bibliographical references. |
| Summary |
This open access book provides an overview of the International Map of Axial Spondyloarthritis (IMAS) project -focusing on Europe-, a wide-ranging, multi-disciplinary collaboration between academic groups, Health Care Professionals (HCPs), patient organizations and Novartis. IMAS was conceived to improve knowledge of Axial Spondyloarthritis (axSpA) and raise awareness of its heavy burden globally. By asking more than 2,000 patients across Europe about the impact of axSpA on multiple aspects of their life, the full extent of this disease was investigated from a direct patient perspective. This allowed a unique understanding of how living with axSpA affects the daily lives and well-being of patients, and how this varies between European countries. Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients will find this book to be an indispensable resource for improving the understanding of this chronic condition, including patients' clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society. |
| Contents |
Executive Summary -- About the Authors -- Introduction -- Objectives.-Methodology -- Demographic Profile of Survey Respondents -- Diagnosis -- Physical Health -- Psychological Health -- Social Support -- Healthcare -- Habits and Lifestyle -- Employment Status and Productivity -- Fears and Hopes -- IMAS European Survey Strengths and Limitations -- Glossary of Terms. |
| Note |
Online resource; title from PDF title page (SpringerLink, viewed September 15, 2022). |
| Subject |
Spondyloarthropathies.
|
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Ankylosing spondylitis.
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Spondyloarthropathies -- Patients -- Europe.
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Ankylosing spondylitis -- Patients -- Europe.
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Ankylosing spondylitis. (OCoLC)fst00809697
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Ankylosing spondylitis -- Patients.
(OCoLC)fst00809698
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Spondyloarthropathies. (OCoLC)fst01130342
|
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Europe. (OCoLC)fst01245064
|
| Added Author |
Navarro-Compán, Victoria, author.
|
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Bundy, Christine, author.
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Mahapatra, Raj, author.
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Makri, Souzi, author.
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Delgado-Domínguez, Carlos J., author.
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Plazuelo-Ramos, Pedro, author.
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Poddubnyy, Denis, author.
|
| Other Form: |
Original 3030976084 9783030976088 303097605X 9783030976057 (OCoLC)1295380035 |
| ISBN |
9783030976064 (electronic book) |
|
3030976068 (electronic book) |
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