LEADER 00000cam  2200529 i 4500 
001    on1040480340 
003    OCoLC 
005    20201201151731.0 
008    180608t20192019nyua     b    001 0 eng   
010      2018027961 
015    GBB908134|2bnb 
016 7  101728810|2DNLM 
016 7  019209228|2Uk 
019    1104149504 
020    9780190684228|qhardcover|qalkaline paper 
020    0190684224|qhardcover|qalkaline paper 
035    (OCoLC)1040480340|z(OCoLC)1104149504 
040    NLM|beng|erda|cNLM|dOCLCO|dDLC|dBDX|dYDX|dOCLCA|dUKMGB
       |dOCLCF|dOCLCO|dYDX|dNLM|dOCLCO|dTOH|dOCLCO|dPX0|dWAU
       |dOCLCO|dVP@|dNZAUC|dGUA|dOCL|dOCLCA|dMCP 
042    pcc 
049    MCPL 
050 04 RC394.H85|bB57 2019 
060 00 2019 C-780 
060 10 WL 359.5 
082 00 616.85/1|223 
100 1  Bird, Thomas|q(Thomas D.)|c(Neurologist),|eauthor. 
245 10 Can you help me? :|binside the turbulent world of 
       Huntington disease /|cThomas Bird. 
264  1 New York, NY :|bOxford University Press,|c[2019] 
264  4 |c©2019 
300    xiii, 270 pages :|billustrations ;|c22 cm 
336    text|btxt|2rdacontent 
337    unmediated|bn|2rdamedia 
338    volume|bnc|2rdacarrier 
504    Includes bibliographical references and index. 
505 0  Preface -- 1. Introduction -- 2. Comparing Huntington 
       disease to other brain diseases -- 3. The genetic testing 
       conundrum -- Part I -- Interacting with the legal and 
       mental healthcare systems / 4. Can you help me? -- 5. It 
       was awful -- 6. The asylum -- 7. Meeting Huntington 
       disease patients at Western State -- 8. I don't know why I
       did it -- 9. Carkeek Park -- 10. Please call the coroner -
       - Part II -- coping strategies / 11. Enjoy the moment -- 
       12. High five -- 13. Let's try a magnet -- 14. "I don't 
       agree" -- 15. The greatest generation and productive 
       lifestyles -- 16. Princess in pink -- Part III -- Marriage,
       family and finances / 17. For better, for worse -- 18. In 
       sickness and in health -- 19. Money problems -- 20. 
       Staying employed -- 21. We just want to have a child -- 
       22. The judge said, "Are you sure you want to do this?" --
       23. The Thanksgiving visitor -- 24. Family opposites -- 
       25. A second wedding -- Part IV -- Embarrassment, injury, 
       neglect and delusions / 26. "Excuse me, madam" and "I am 
       not drunk" -- 27. Broken bones -- 28. A bump on the head -
       - 29. Impulse control -- 30. Reservation blues -- 31. Is 
       this negligence? -- 32. Delusions, hallucinations and 
       diabolical possession -- 33. The downward spiral -- 24. A 
       visit to Willow Park -- Part V -- Summing up / 35. Summing
       up: "Can you help me?" -- Acknowledgements -- Appendix: 
       Genetic testing for Huntington disease -- Index. 
520    This book shares the surprising, insightful, challenging, 
       and even encouraging stories of patients and their 
       families who live with Huntington Disease. Having seen 
       patients for more than 40 years, Dr Thomas Bird, a pioneer
       neurogeneticist, adds a human touch to this genetic brain 
       disease that devastates persons during mid-life when they 
       can least afford it. With a brief history of Huntington 
       Disease and the occasional scientific detail, the true 
       heart of the book is the human experience of the disorder:
       -The man who cannot stay out of prison because he is 
       addicted to being a burglar. -Another man shoots and kills
       his roommate while watching television and cannot explain 
       why he did it. -The woman with Huntington Disease copes 
       with her depression by using Texas line dancing. -A twelve
       year old girl with juvenile Huntington Disease who can 
       barely walk and talk, but her classmates rally around with
       touching and heartfelt support. -And the 72 year old man 
       with late onset Huntington Disease and severe depression 
       is made worse by ECT, but improved (for a while) with 
       Transcranial Magnetic Stimulation. These are just some of 
       the compelling stories of people of all ages and in all 
       walks of life who feel trapped by a progressive 
       degenerative brain disease from which there is no escape. 
650  0 Huntington's disease. 
650  0 Huntington's disease|xPatients. 
650  7 MEDICAL / Genetics.|2bisacsh 
650  7 Huntington's disease|xPatients.|2fast|0(OCoLC)fst00964259 
650  7 Huntington's disease.|2fast|0(OCoLC)fst00964257 
650 12 Huntington Disease.|0(DNLM)D006816 
655  2 Case Reports.|0https://id.nlm.nih.gov/mesh/D002363 
655  7 Case studies.|2fast|0(OCoLC)fst01423765 
655  7 Case studies.|2lcgft 
994    C0|bMCP