Description |
1 online resource (xii, 194 pages, 16 unnumbered pages of plates) : illustrations (chiefly color) |
Contents |
Two Roads Diverged in Apartment 2-B -- Disability as a Social Condition -- Divorce, Bar Mitzvahs, and Preadolescence : Wasn't My Life Hard Enough? -- My Unfortunate, Life changing Incarceration -- The End of Childhood -- Maman Est Morte -- What I Gained and Lost in College -- If No One Notices a Disability, Does It Really Exist? -- Becoming more Disabled -- Nesting -- The Bubble Bursts -- The Ghanian Connection. |
Note |
Print version record. |
Summary |
Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage? Mattlin?s life happened to parallel the growth of the disability rights movement, so that in many ways he did not feel that he was disadvantaged at all, merely different. Miracle Boy Grows Up is a witty, unsentimental memoir that you won?t forget, told with engrossing intelligence and a unique perspective on living with a disability in the United States. |
Subject |
Mattlin, Ben, 1962-
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Spinal muscular atrophy -- Patients -- United States -- Biography.
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People with disabilities -- United States -- Biography.
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Authors with disabilities -- United States -- Biography.
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People with disabilities -- Civil rights -- United States.
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Social movements -- United States.
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Spinal Muscular Atrophies of Childhood.
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Civil Rights -- legislation & jurisprudence.
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Disabled Persons.
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United States.
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BIOGRAPHY & AUTOBIOGRAPHY -- Personal Memoirs.
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BIOGRAPHY & AUTOBIOGRAPHY -- Medical.
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MEDICAL -- Surgery -- General.
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Genre/Form |
Personal Narratives.
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Other Form: |
Print version: Mattlin, Ben, 1962- Miracle boy grows up. New York, NY : Skyhorse Pub., ©2012 9781616087319 (DLC) 2012017734 (OCoLC)759908794 |
ISBN |
9781620875148 (electronic bk.) |
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1620875144 (electronic bk.) |
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